It has been 10 weeks since my first Entyvio infusion, and today I get a third.  Limited research suggests that patients begin to see positive results around Week 10.  But, those positive results are more common for patients with Ulcerative Colitis – not Crohn’s.  With Crohn’s, outcomes are a little more spotty.

At the time I left work on March 31, my condition was so severe that I was home-bound on many days.  When I was working I refused to see the connection between the stress of the job and my symptoms, but boy howdy, do I get it now.  About 30 days after leaving the job, my symptoms decreased.  Not the “Jump for joy, I’m HEALED at the tent revival!” sort of decreased, but better.

That’s where I am currently.  Not 15 loo visits per day, but still in the range of five or more.

Things were so bad before, I am THRILLED with my new number. But, I don’t think Entyvio had anything to do with it.  It was too soon to see those types of results.

Let’s see if Entyvio can knock this out of the park.  If not, I’m told it’s clinical trials at the U of W for me.  I don’t even want to THINK about what that could mean for my plan and my road trip.  If Entyvio works, I need an infusion every 8 weeks, and I can get those on the road.  If it’s clinical trials, I’m tied to Seattle, at least for a while longer.

Even if Entyvio puts me into remission, I worry what the future will hold.  At least four drugs worked for me initially, then failed.  Remission is just that; it is not a cure.  I have a chronic disease for which there is no cure.  I could enter remission, hit the road, and have an active flare, pulling me back to Seattle for care and treatment.

Stop futurizing, Tammy.  Take it one day at a time.